Wings For Jonathan - Printable Journal Kit

Wings For Jonathan - Printable Journal Kit

Jonathan Pitre was the Canadian face of EB, or Epidermolysis Bullosa, a rare and painful disease that causes the skin to blister. He died in 2018 at the age of 17 after a lifelong fearless battle with the illness.

I'm dedicating this kit to him and everyone who suffers with this illness. They are called 'butterfly children' because in Jonathan's own words, 'their skin is as fragile as butterfly wings'. 

A portion of the revenue from each kit sold will be donated to Debra Canada, 'a voluntary, non-profit charity dedicated to providing support for people affected by EB and their immediate families, and to increasing Canadians’ awareness of this challenging disease.' (as described on their website).

The kit is designed to make a journal that measures 5.5x8.5".

Copyright Ephemera's Vintage Garden, 2017. See terms of use for details on selling your handmade items made with these designs.